For talking about how it feels to be a kid with bladder extrophy and associated disorders, and how it feels to be their parent or sibling. In our own words and for each other.

Sunday, November 4, 2007

From the Grown-ups with Exstrophy

I've asked all ages of people to contribute to the blog and I've been hearing from many adults about their experiences growing up. They have offered their stories, their advice and their hope freely to me and to my son. This is where you can find their posts! Feel free to add your own...